"I am going to do what ever I can to help raise awareness and funding to cure FOP."

The Mission of The Weldon FOP Research Fund

The Weldon FOP Research Fund is to provide the FOP Laboratory with the staff and resources they need to find the cure.


To successfully utilize animal models of FOP zebra fish and mice to learn more about the condition and find novel, yet safe treatment options.

To begin trials of medical therapy and treatment options on humans.

To provide the most compassionate medical advice and care for our patients

Making a Difference

Raising Funds to Find a Cure

Donate to the Weldon FOP Research Fund

Raising Awareness

Scooting around NYC finding everything that is wheelchair accessible


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Donate to the Weldon FOP Research Fund

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