FOP News

The latest news from the IFOPA....Read More

Innovative Drug Trials....Read More

Research News

After many years of successful basic and translational research, we have begun an important and exciting era of clinical trials for FOP. Clinical trials designed to advance the understanding of FOP and potential treatments are taking place around the world. The IFOPA is dedicated to providing you with information on clinical trials.....Read More

Research at the Children's Hospital of Philadelphia...Read More

Whitney in the News

Making a Difference

Raising Funds to Find a Cure

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Raising Awareness

Scooting around NYC finding everything that is wheelchair accessible

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