Going Green for FOP

CHC_Santorium_wear_greenIt was the year 2005 when two of Whitney's friends really wanted to help raise awareness for FOP and asked us about making a FOP Awareness Bracelet. It wasn't long after that when the Weldon Family and the International FOP Association teamed up to launch the FOP Awareness Bracelet around the world. 20,000 bracelets have been shipped worldwide. Our FOP families around the world gets especially excited when the celebrities and high profile people we love wear our bracelet!

Read 955 times Last modified on Saturday, 28 November 2009 20:05

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What is FOP?

FOP in an abbreviation for Fibrodysplasia Ossificans Progressiva ( fī'brō-dĭs-plā'zhə ŏ-sĭf'ĭ-kānz'  prō'grĭ-sī'və) previously known as Myosis Ossificans Progressiva. 

FOP is a rare and distressing medical condition where bone forms in muscles and other soft tissues of the body.

Whenever extra bone is formed across the joints it restricts movement. It is a progressive disease and there is no cure. It does not effect a persons intelligence. 

FOP affects 1 in 2 million people worldwide. It has no ethnic or religious pattern. 

There has been 700 confirmed cases across the globe from an estimated 2500. 

There are 285 known cases in the United States.

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