FOP Benefit Concert Featured in Vanity Fair & Daily Record

bildeThe FOP benefit concert featuring rapper Sam Adams is being featured in articles in  Vanity Fair , VogueTeen,  and the   Excerpt from article: Since 2001, when Whitney Weldon was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP), one of the rarest, most disabling genetic conditions known to medicine, her family has worked tirelessly raising money for a cure.  This year, Whitney, 18, and several of her classmates at the Pingry School in Martinsville, have taken fundraising into their own hands by organizing a benefit concert featuring popular hip-hop artist Sam Adams, Sunday night at the Community Theatre at the Mayo Center for the Performing Arts in Morristown. 

Read the entire Vanity Fair article here.  Take a look at the VogueTeen feature.  See the full Daily Record article and get details about the event here.

What is FOP?

FOP in an abbreviation for Fibrodysplasia Ossificans Progressiva ( fī'brō-dĭs-plā'zhə ŏ-sĭf'ĭ-kānz'  prō'grĭ-sī'və) previously known as Myosis Ossificans Progressiva. 

FOP is a rare and distressing medical condition where bone forms in muscles and other soft tissues of the body.

Whenever extra bone is formed across the joints it restricts movement. It is a progressive disease and there is no cure. It does not effect a persons intelligence. 

FOP affects 1 in 2 million people worldwide. It has no ethnic or religious pattern. 

There has been 700 confirmed cases across the globe from an estimated 2500. 

There are 285 known cases in the United States.

Whitney's Story